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Ton Van Den Bogert
05-22-2003, 06:18 AM
Dear subscribers,

We usually do not distribute patient-related requests, but exceptions can
be made. This request is well written and it may serve to remind us of the
real-world problems that we can solve with our research.

Please reply only to mthweatt@MSN.COM.

--

Ton van den Bogert, Biomch-L co-moderator

-------- Original Message --------
> This message was originally submitted by mthweatt@MSN.COM to the BIOMCH-L list
> at NIC.SURFNET.NL.
>
> My 10 year old grandson needs help with lighter more "boy" friendly leg b=
> races. He was born with Spina Bifida but has some (very little) feeling =
> and movement in his lower legs and feet. His legs are very week and will=
> not hold him up any more as he has grown and gained weight. His thighs,=
> however, are strong.
>
> The braces he has been trying to wear for several years are bulky and hea=
> vy. They are in the shop being worked on more than they are on him. The=
> y bend and screws fall out or they rub blisters on him.
> We live in a rural area in Tennessee and have traveled to the two largest=
> cities near us - Memphis and Nashville - but we are not been able to fin=
> d someone innovative enough to fit him with something other than more of =
> the same. Because of this he spends most of his time in a wheelchair.
>
> Is there someone out there who can help him walk? He wants to play socce=
> r, walk on the beach, and move easily about his classroom. He works so h=
> ard to ambulate when the braces are available and goes nonstop without a =
> walker because he is so proud to be walking. There must be a reliable al=
> ternative to the heavy metal versions strapped to his hips and constantly=
> breaking he has been used to. =20
>
> Thank you to anyone with information.
>
> Marti Thweatt
> mthweatt@MSN.COM

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