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H.j. Woltring, Fax/tel +31.40.413 744
10-05-1992, 02:05 AM
Date: Sat, 3 Oct 1992 23:06:27 EDT
From: BROEDEL@FSU.BITNET
Subject: ALS experts
Sender: Hospital Computer Network Discussion Group and Data Base


The following message is being FAXed to the addresses listed
at the end of this message. I am trying to locate experts on
the disease AMYOTROPHIC LATERAL SCLEROSIS (ALS) so I can ask
them for assistance. Please let me know about other ALS experts
that I should contact.

Many thanks, Bob Broedel, Tallahassee.
-----------------------------------
START OF MESSAGE THAT IS BEING FAXED.

Recently my best friend was diagnosed by a local neurologist as
having ALS. And we are now in the process of getting a second
opinion from the Mayo Clinic in Jacksonville, Florida.

My understanding of the situation is that one goes down kind of a
"checklist", eliminating such causes as heavy metal intoxication,
adult spinal muscular atrophies, endocrine abnormalities, myelopathy,
motor neuropathies associated with gammopathy, hexosaminidase A
deficiency, diabetic amyotrophy, multifocal motor neuropathy,
neurologic complications of Lyme disease, organophosphate insecticide
intoxication, stroke, cervical spondylitic radiculpathy, lymphoma, etc.
until one is left with ALS as the only remaining possibility.

It is also my understanding that the "checklist" is dynamic, in that
it "grows" almost daily, containing additional possibilities (some of
them treatable) as practitioners and researchers learn more about
motor neuron diseases.

I would also assume that only a very select working group of ALS
experts would have the most complete and up-to-date versions of such
a "checklist", and that it would not be available merely by looking
at a (dated) textbook or maybe even via a database search of articles.

With that in mind, I am desperately seeking contact with ALS experts
with hopes that you will mail or send by FAX the latest version of
your "checklist" to our consulting neurologist, as follows:

Dr. Sylvana Riggio
Department of Neurology
MAYO CLINIC JACKSONVILLE
4500 San Pablo Road
Jacksonville FL 32224 USA
TEL +1-904-223-7087
FAX +1-904-223-2898

Please help with this urgent (before 12 October, please) request
if at all possible.

I, and my friend Carmen Avila, will very much appreciate any
help that you can offer. If there is ever anything that I can do
to repay the favor, please let me know what I can do for you.

Most sincerely, and with hope, Bob Broedel

=======================
Bob Broedel, Engineer
Meteorology Department
Love Bldg, Room 404, B-161
FLORIDA STATE UNIVERSITY
Tallahassee, Florida 32306-3034 USA
----------------------------------------------------------------------
Telephone, 904-576-4906 (home), 904-644-6840 (work, answering machine)
Internet..broedel@geomag.gly.fsu.edu MCI Mail..298-0782
San Francisco-Moscow Teleport (SFMT)..bro EasyLink..62930541
TELEX (AT&T EasyLink).5106014520 (TALLY-KRAS FL) PeaceNet..bbroedel
TELEX (MCI/WUI)..6502980782 (6502980782MCI UW) BITNET..BROEDEL@FSU
FAX 904-644-9642 ATTN: BROEDEL CompuServe..71107,1710
IASNET (Moscow) "Russian Express" .. X.25 (250299000036)..BROEDEL
IASNET (Moscow) "Mini-Mail" ...... X.25 (25029900005400)..BROEDEL
----------------------------------------------------------------------

END OF MESSAGE.

:
TO : ALS Association
: 21021 Ventura Blvd., Suite 321
: Woodland Hills, CA 91364
: tel 818-340-7500
: FAX 818-340-2060
:

:
TO : Dr. Rup Tandan
: ALS Clinical Department of Neurology
: College of Medicine of the University of Vermont
: Department of Neurology
: 1 South Prospect Street
: Burlington VT 05401
: tel 802-656-4588
: FAX 802-656-2461
:

:
TO : Dr. Howard Natter
: ALS Clinical Services Center of Hahnemann University
: Hahnemann University Hospital
: Broad & Vine Streets
: Philadelphia PA 19102
: tel 215-246-5010
: FAX 215-246-5928
:

:
TO : Dr. Hiroshi Mitsumoto
: ALSA Center
: Cleveland Clinic Cleveland Clinic Foundation
: 9500 Euclid Avenue
: Cleveland OH 44106
: tel 216-444-5418, 800-321-5398 Ext 5418
: FAX 216-444-9401
:

:
TO : Dr. Daniel S. Newman
: Harry J. Hoenselaar ALS Clinic
: Henry Ford Hospital
: 2799 West Grand Avenue
: Detroit MI 48202
: tel 313-876-2594
: FAX 313-876-3014
:

:
TO : Dr. Mark B. Bromberg
: Motor Neuron Disease Clinic
: University of Michigan Medical Center
: Department of Neurology
: 1324/0322 Taubman Center
: 1500 East Medical Center Drive
: Ann Arbor MI 48109-0316
: tel 313-936-7165
: FAX 313-936-8763
:

:
TO : Dr. Stanley Appel
: 6501 Fannin Street, Suite 336
: Houston TX 77030
: Tel 713-798-5971
: FAX 713-798-3853
:

:
TO : Dr. Forbes H. Norris
: ALS Research Center
: Pan Med Bldg., Room 110
: Pacific Presbyterian Medical Center
: 2100 Webster Street
: San Francisco CA 94115
: tel 415-923-3604
: FAX 415-923-6596
:

:
TO : Dr. Bernard M. Patten
: Smith Towers
: 6550 Fannin Street, Suite 1801
: Houston TX 77030
: Tel 713-798-5971
: FAX 713-798-5864
:

:
TO : Dr. Dan Drachman
: Department of Neurology
: The Johns Hopkins School of Medicine
: 5-119 Meyer Building
: 600 North Wolfe Street
: Baltimore MD 21205
: TEL 301-955-3282
: FAX 410-955-1961
:

:
TO : Dr. Michael Oldstone
: Scrips Clinic and Research Foundation
: La Jolla, CA 92307
: TEL 619-455-9100
: FAX 619-554-9981
:

:
TO : Dr. Walter G. Bradley
: Department of Neurology
: University of Miami School of Medicine
: P.O. Box 016960 (D45)
: Miami FL 33101
: TEL 305-547-6718
: FAX 305-547-2512
:

:
TO : Dr. Lewis P. Rowland
: Neurological Institute
: Columbia-Presbyterian Medical Center
: New York NY 10032-2603
: TEL 212-305-8551
: FAX 212-305-6978
:

:
TO : Muscular Dystrophy Association
: 3561 East Sunrise Drive
: Tucson AZ 85718
: TEL 602-529-2000
: FAX 602-529-5300
:

:
TO : Dr. Alan Pestronk
: Division of Neuromuscular Diseases
: Neuromuscular Clinic
: Washington University School of Medicine
: Campus Box 8111
: 660 South Euclid Avenue
: St Louis MO 63110-1093
: TEL 314-362-6981
: FAX
:

:
TO : Dr. Benjamin R. Brooks
: ALS Clinical Research Center
: University of Wisconsin
: 600 Highland Avenue, J6504
: Madison WI 53792
: TEL 608-263-9057
: FAX
:

:
TO : Les Turner ALS Foundation, Ltd.
: 3325 West Main Street
: Skokie IL 60076
: TEL 708-679-3311
: FAX
:

:
TO : Dr. Richard A. Smith
: Center for Neurological Study
: 11211 Sorrento Valley Road
: San Diego CA 92121
: TEL 619-457-2570
: FAX
:

:
TO : Dr. Melvin Greer
: Department of Neurology
: College of Medicine
: University of Florida
: P.O. Box 100236
: Gainesville FL 32610-0236
: TEL 904-392-3491
: FAX 904-392-6893
:

:
TO : Dr. Peter J. Dyck
: Mayo Clinic and Foundation
: Rochester MN 55902
: TEL 507-284-3250
: FAX 507-284-0161
: